How would you feel if you couldn't do or struggled to do everyday tasks?
Getting dressed, washing your own hair, typing an email, writing school work, carrying a shopping bag.
Important things like cooking a meal, using a kettle, cutting up food, trying to open a jar or drink bottle.
How about changing a nappy/diaper, pushing a stroller or holding a child.
opening or closing a car door?
Or just your own front door.
Now imagine being a child or teenager not just an adult.
These are examples of tasks Madelung Deformity sufferers face everyday.