How would you feel if you couldn't do or struggled to do everyday tasks?

Getting dressed, washing your own hair, typing an email, writing school work, carrying a shopping bag.

Important things like cooking a meal, using a kettle, cutting up food, trying to open a jar or drink bottle.

How about changing a nappy/diaper, pushing a stroller or holding a child.

opening or closing a car door?
bathroom/toilet door?
Or just your own front door.

Now imagine being a child or teenager not just an adult.

These are examples of tasks Madelung Deformity sufferers face everyday.